Hi Jane - good to hear that you're getting a bit better now. I've had jaw pain too - and it's really upsetting. It could be that your meds need tweaking if you're sore all over. Can you ring the nurse helpline?
When I have flare ups it's usually helped by resting more - I find that when I'm well I tend to overdo it and then I get more pain and have to make a conscious effort to relax. I do lots of jaw wiggling, because sometimes it can get stiff, especially if I've been busy and have been clenching my teeth together (usually without noticing that I'm doing that)!!
At the moment my hands are very sore and my jaw hurts too, plus I can't straighten my elbows - nothing horrendous, but annoying and tiring - I think my meds need tweaking! I agreed to reduce my HDX at my last nurse appointment a few months back, but gradually I'm finding that stiffness and pain are creeping back so I think I'll have to go back to 2 tablets a day. Hearing your comments has reminded me that I've been meaning to ring for days now, so I really must!
Thanks and hope you feel even better soon - Sylvia xx
Be kinder than is necessary because everyone you meet is fighting some kind of battle